Personal updates:
Jeni
I am still involved with mylifeautistic, however for the foreseeable future I will need to focus on my daughter and I. I’m currently going through a divorce and may be a witness in the trial against my husband. I don’t want to add more pressure on myself at this time. When things settle a bit ill properly be back, it’s just the future is very uncertain at the moment.
Ross
I have reduced my workload quite considerably. The main problem I have is passing out due to nerve pain. It’s much like the feeling you get when you are sedated for surgery. At the moment I am getting the available pain management from my doctor’s , but it’s not enough. I can cope with the pain in the summer but the winter is an arduous undertaking.
I have been referred back to the pain clinic and I have a telephone appointment on the 28th with my GP. I have been made aware of a potential solution to the nerve pain. I have asked my doctor about the possibility of spinal decomposition surgery. This wouldn’t be an end to my pain, but may reduce it and/or give me back some of the mobility I’ve lost. For me it’s a bit of a waiting game at the moment, until I get further information from my doctor at the end of the month.
As for mylifeautistic we have two projects that I’d like to see through. We want to help create medical support cards for doctors offices, dentists and hospital. We need to hire an artist and create a focus group on Discord. I plan on doing that this summer. The other project is to find more suitable alert sounds for emergency service vehicles. We already have someone looking at the sounds of emergency service vehicles in other countries. This is to see if there are more suitable options already being used elsewhere in the world that we could consider.
Image description: A person sitting on a bench resting with a thought bubble showing a clutter of thoughts. On the white wall behind them is a collection of graffiti, which includes abstract shapes, colours, a stylised skull and music notes. Text: Always be kind to your mind.
All our best and love
Ross Fraser and Jeni Dern
Written by – Ross Fraser
